Rare Barometer survey launched on rare diseases and social participation July 2024

https://www.eurordis.org/rare-barometer-launches-survey-social-dimensions/ The Rare Barometer survey on the impact of rare diseases on everday life is now open. This new survey is investigating the societal obstacles encountered by people living with a rare disease in various aspects of their lives, from a human rights perspective. If you are impacted by a rare disease, share your experiences by taking this survey, available in 25 languages!