Aporte a la rutina de la trinchera asistencial donde los conocimientos se funden con las demandas de los pacientes, sus necesidades y las esperanzas de permanecer en la gracia de la SALUD.
miércoles, 10 de julio de 2024
EURORDIS: EU4Health must recognise added value of EU action on rare diseases June 2024
https://www.eurordis.org/eu4health-must-recognise-added-value-eu-action/
Last month, EURORDIS called on the European Commission to recognise the value of EU action on rare diseases in the EU4Health programme. Subsequently, EURORDIS welcomed the conclusions reached by all 27 EU health ministers at an EPSCO Council meeting, which urged the EU to prioritise health in the 2024-29 EU Strategic Agenda. Continuing our advocacy, on 12 July, our Public Affairs Director Valentina Bottarelli will address the European Economic and Social Committee (EESC) to discuss EU-level achievements and challenges for rare diseases.
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