Aporte a la rutina de la trinchera asistencial donde los conocimientos se funden con las demandas de los pacientes, sus necesidades y las esperanzas de permanecer en la gracia de la SALUD.
jueves, 18 de abril de 2024
Rare Revolution
https://editions.rarerevolutionmagazine.com/html5/reader/production/default.aspx?pubname=&edid=17784672-cf4c-4bad-b1c0-41cc985a8f41&pnum=81
President of EURORDIS, Avril Daly, and our new Chief Executive Officer, Virginie Bros-Facer, have contributed to the latest edition of Rare Revolution. In their joint editorial article, Avril and Virginie highlight EURORDIS' key priorities over the coming months ahead of the European elections, which include improving diagnostics, integrating healthcare pathways, intersectional advocacy, and expanding access to rare disease treatments.
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