Aporte a la rutina de la trinchera asistencial donde los conocimientos se funden con las demandas de los pacientes, sus necesidades y las esperanzas de permanecer en la gracia de la SALUD.
sábado, 23 de septiembre de 2023
Newborn screening
https://www.eurordis.org/our-priorities/diagnosis/newborn-screening/
Newborn screening
94% of people who live with a rare disease and those close them support the diagnosis of a medical condition at a child's birth. Newborn screening is important to many people living with a rare disease and their families. This month, EURORDIS has focused on campaigning for the harmonisation of criteria and adequate policies for newborn screening across Europe. Support our efforts by joining the conversation using the hashtag #Screening4Rare on social media.
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