Creating Awareness Connecting Families, Funding Research, Maintaining Hope.: Lafora disease: The stories of Robin & Angelina

The journeys of Robin and Angelina, two young individuals living with Lafora Disease, may be separated by thousands of miles, but they intertwine through shared experiences. Lafora disease, a terminal neurodegenerative condition affecting children, currently lacks a cure. EURORDIS sheds a light on Robin's and Angelina's stories and the brilliant work of the Chelsea’s Hope Lafora Children Research Fund. Would you like to share your story with us about life with a rare disease to support our Community article series? Contact Rhiannon Walls, our Communications Junior Manager, at rhiannon.walls@eurordis.org. https://chelseashope.org/