Personal Stories: Genetic Diseases

Personal Stories: Genetic Diseases

Search Result Summary

CDC Resources

• CDC Web Information (2)
• CDC-Authored Genomics Publications (0)

Discoveries and Insights

• Hot Topics (11)
• Genomics & Health Impact Scan (1)
AMD Weekly Clips (0)

Epidemiology

• Human Genome Epidemiology (0)
• AMD Clips (0)

Translational Research

• Genomics & Health Impact Scan (0
• AMD Weekly Clips (0)

Evidence Synthesis

• Guidelines (0)
• Evidence Classification (0)
• Genomics & Health Impact Scan (0)

Practice and Implementation

• Implementation (1)
• Genomics & Health Impact Scan (0)

Relevant Resources

• Cancer Genomics and Epidemiology Navigator (CGEN)
• Genetics and Genomics Competencies Center (G2C2)
• NIH Genetic Testing Registry
• NIH MedGen Database
• Online Mendelian Inheritance in Man (OMIM)
• PharmGKB

What's New

Last Updated: Jan 26, 2016

• My legacy to my daughters: BRCA and cancer?
  L Goldin, January 25, 2016 (From Discoveries and Insights Database)
• How I Avoided Cancer 6 Times
  D Hardesty Blog Post, My support 360, January 2016 (From Discoveries and Insights Database)
• Genetic Testing: Understanding the Personal Stories.
  DuBois James M et al. Narrative inquiry in bioethics 2015 5(3) 201-3 (From Genomics & Health Impact Scan Database)
• Recommendations and Reality: What Personal Stories of Hereditary Cancer Can Tell Us
  R Green Fisk, CDC Blog Post 2015 (From CDC Information Database)
• Genetic Testing: Understanding the Personal Stories
  J Dubois, Narrative Inquiry in Bioethics, Winter 2015 (From Discoveries and Insights Database)
• Whole Genome Sequencing Solved Our Family’s Genetic Mystery: Titin
  S Foye, Narrative Inquiry in Bioethics, Winter 2015 (From Discoveries and Insights Database)
• Illusions of Certainty
  C Keirns, Narrative Inquiry in BIoethics, Winter 2015 (From Discoveries and Insights Database)
• The Impact of My Genetic Testing on My Father
  Narrative Inquiry in Bioethics, Winter 2015 (From Discoveries and Insights Database)
• A Sister, a Father and a Son: Autism, Genetic Testing, and Impossible Decisions
  Narrative Inquiry in Bioethics, Winter 2015 (From Discoveries and Insights Database)
• Personal Narratives of Genetic Testing: Expectations, Emotions, and Impact on Self and Family 
  EE Anderson, Narrative Inquiry in Bioethics, Winter 2015 (From Discoveries and Insights Database)
• Diagnostic impact of genetic testing in hypertrophic cardiomyopathy: The story of two families.
  Lorca Rebeca et al. International journal of cardiology 2015 Dec 205161-162 (From Discoveries and Insights Database)
• Utah Genomics Plan
  Disease: Multiple Diseases; Type: Education|Program; State: Utah (From Implementation Database)
• Hereditary Cancer Personal Stories: Over 1 million people in the United States have an increased risk for certain types of cancer 
  (From Discoveries and Insights Database)
• Personal Stories of People Living with Thalassemia
  CDC Social Media (From Discoveries and Insights Database)