EURORDIS - The Voice of Rare Disease Patients in Europe

EURORDIS - The Voice of Rare Disease Patients in Europe

 

Guiding Principles for Social Care

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EUCERD Joint Action Workshop on 'Guiding Principles for Social Care in Rare Diseases', 09-10 October 2014, Norway - Presentations

• EUCERD Joint Action by Victoria Hedley, Newcastle University
• Specialised Social Services and integration of rare diseases into social policies: state of the art by Raquel Castro, EURORDIS
• Introduction to the workshop by Dorica Dan, EURORDIS and Raquel Castro, EURORDIS
   

State of the Art of Social Care Pathways:

• France by Christel Nourissier, Alliance Maladies Rares, EUROPLAN advisor and member of the Regional Committee for Rights and Autonomy of People Living with Disabilities
• Norway by Stein Are Aksnes, general director of the Norwegian National Advisory Unit on Rare Disorders
• Norway by Ragnhild Øverland Arnesen, Prader-willi Association Norway
• Italy by Simona Belagambi, UNIAMO, EUROPLAN advisor
• Sweden by Maria Montefusco, EUROPLAN advisor, project manager at the Council of Nordic Cooperation on Disability, Nordic Centre for Welfare and Social Issues

Page created: 15/10/2014
Page last updated: 15/10/2014