Waldenström in South America - Waldenstrom Macroglobulinemia (WM) community - RareConnect

Waldenström in South America - Waldenstrom Macroglobulinemia (WM) community - RareConnect

RARECONNECT

Online Communities for Rare Disease Patients The Waldenström macroglobulinemia patient who is doing a cycling tour in South America Waldenström in South America I was diagnosed with Waldenström disease in 2005. Written by mangri, published 11 days ago. I had my first session of chemotherapy in 2009/2010. Since then I feel completely physically fit and have no symptoms whatsoever. That's why I support the German Leukaemia Foundation by going on my unusual cycling tours. In 2013 I rode across the USA on my touring bike: 6,230 kilometres from Florida to San Francisco. As of 19 January 2015, I'll be on the road again with my touring bike - this time in South America. With this 11-week cycling tour, I would like to encourage other patients to fight against the condition. It really is worthwhile doing so. You can follow my tour through Chile and Argentina here: http://www.mein-zeitfenster.blogspot.de/ I want to… Tell my story > Start a discussion > Meet other members > Learn about the disease > Discussion Topics MGUS versus MW DUDA My meeting with Waldenstrom pazienti giovani con m. di waldenstrom? Update on Ibrutinib from Dr. Steve Treon's research maladie de waldenstrom et nucléaire Aclasta-therapy Nuova sperimentazione sulle malattie del cancro e delle leucemie The long wait... newly diagnosed WM (new member) View All Latest Waldenstrom Macroglobulinemia (WM) Community Activity Please check my pagereply published about 1 month ago show transcript IBRUTINIB IN EUROPE – IMPORTANT UPDATEtopic published about 1 month ago show transcript Blurred vision and bleeding behind eyesreply published about 1 month ago show transcript NEW IWMF AFFILIATE/SUPPORT GROUP ESTABLISHED in ITALYreply published about 1 month ago show transcript MGUS contro MWreply published 3 months ago show transcript Things that worktopic published 3 months ago show transcript Clinical Trial for WM: Ibrutinib With Rituximabtopic published 3 months ago show transcript Three Lectures from the International Patient Forum, London 2014reply published 3 months ago show transcript