EURORDIS - The Voice of Rare Disease Patients in Europe

EURORDIS - The Voice of Rare Disease Patients in Europe

PATIENTS, ORGANISATIONS, SERVICES

Read about living with a rare disease and the services available Download NOW: Presentations from the EUCERD Joint Action workshop on 'Guiding Principles for Social Care in Rare Diseases' 9-10 October, Norway Guiding Principles for Social Care ShareThis EUCERD Joint Action Workshop on 'Guiding Principles for Social Care in Rare Diseases', 09-10 October 2014, Norway - Presentations EUCERD Joint Action by Victoria Hedley, Newcastle University Specialised Social Services and integration of rare diseases into social policies: state of the art by Raquel Castro, EURORDIS Introduction to the workshop by Dorica Dan, EURORDIS and Raquel Castro, EURORDIS   State of the Art of Social Care Pathways: France by Christel Nourissier, Alliance Maladies Rares, EUROPLAN advisor and member of the Regional Committee for Rights and Autonomy of People Living with Disabilities Norway by Stein Are Aksnes, general director of the Norwegian National Advisory Unit on Rare Disorders Norway by Ragnhild Øverland Arnesen, Prader-willi Association Norway Italy by Simona Belagambi, UNIAMO, EUROPLAN advisor Sweden by Maria Montefusco, EUROPLAN advisor, project manager at the Council of Nordic Cooperation on Disability, Nordic Centre for Welfare and Social Issues Page created: 15/10/2014 Page last updated: 15/10/2014