Campaign for European Year for Rare Diseases 2019

Campaign for European Year for Rare Diseases 2019

EUROPEAN YEAR FOR RARE DISEASES 2019

Join the campaign to put rare diseases in the spotlight in 2019 Make 2019 the official European year for YOUR rare disease. Sign up now! In 2019, we will celebrate the 20 year anniversary of the adoption of the EU Regulation on Orphan Medicinal Products and the 10 year anniversary of the Commission Communication and Council Recommendation on rare diseases. The European Year will send a strong public and political message on behalf of the 30 million Europeans who suffer from a rare disease and will raise awareness and encourage researchers to focus on these rare, mostly unknown, seriously debilitating and often life-threatening diseases.