Online social network for patients and families who live with a rare disease - Rare Disease Communities

Online social network for patients and families who live with a rare disease - Rare Disease Communities

Comunidades de Enfermedades Raras ^beta

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Rare Disease Communities helps patients to understand their condition, connect with other patients and provides tools for living with their diseases

 

Understand. Daily life with a rare disease.

• - Browse patient testimonies,
• - Share images & photos,
• - Find explanations,
• - Contact patient associations

Meet! Connect with other patients.

• - Start conversations,
• - Interact with others,
• - Ask questions,
• - Meet other patients or families

Learn. Learn more and find resources.

• - Contact expert patients,
• - Become informed,
• - Download,
• - Find information adapted to your needs

• Member's Story

  Grace's Story
  from the
  Glut1 DS Community
• 
  

  Recent discussion

  Arcalyst/Rilonacept
  from the
  CAPS Community
•