Aporte a la rutina de la trinchera asistencial donde los conocimientos se funden con las demandas de los pacientes, sus necesidades y las esperanzas de permanecer en la gracia de la SALUD.
jueves, 1 de abril de 2010
Yann le Cam - (Part 1) Concluding remarks from European Workshop on Rare Disease Research
Part 1: Concluding remarks
These are a series of videos of the concluding remarks to a European Workshop on Rare Disease Research entitled: "Bridging Patients and Researchers to Build the Future Agenda for Rare Disease Research in Europe" organised by EURORDIS which was held March 1st in Brussels. Throughout the day, prestigious speakers, panellists and discussants made the case for RD research to be included in public funding schemes and remain high in the European research agenda.
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