miércoles, 18 de junio de 2025

World Health Assembly Adopts Rare Disease Resolution Sedeer el-Showk May 27, 2025

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https://www.medscape.com/viewarticle/world-health-assembly-adopts-rare-disease-resolution-2025a1000dbb As featured in Medscape last month,...

EMA’s 30th anniversary scientific conference - Medicines, regulation and the future 25 June Amsterdam

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https://www.ema.europa.eu/en/events/emas-30th-anniversary-scientific-conference-medicines-regulation-future

Living with the Invisible: My Journey with Osteogenesis Imperfecta and Chronic Pain

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https://www.eurordis.org/living-with-the-invisible/ Mental health In our latest mental health testimony, Alessandra Tolaccia shares her pow...

EURORDIS Membership Meeting (EMM) 2025

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https://www.eurordis.org/eurordis-membership-meeting-emm-2025/ EMM 2025 Last month's 2025 EURORDIS Membership Meeting (EMM) in Riga u...

Empowering advocates, advancing knowledge: Highlights from the 2025 EURORDIS Open Academy

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https://openacademy.eurordis.org/highlights-2025-eurordis-open-academy/ Open Academy The 2025 EURORDIS Open Academy Schools in Barcelona we...

Keep Patients Voting: Campaign Toolkit

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Keep Patients Voting: Campaign Toolkit Keep Patients Voting is a joint campaign for patient organisations led by EURORDIS–Rare Diseases Eur...

Ambition and precision: How the EU’s pharma package can still be improved June 2025

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https://www.eurordis.org/how-pharma-package-can-be-improved/ On Tuesday 17 June, the European Parliament, the Council of the EU and the Eur...