European Health Data Space (EHDS) Training Sessions September 2024

https://www.eurordis.org/european-health-data-space-ehds-training-sessions/ Training Session 1: How does the EHDS work? ➡️ Register now! 🗓️ 30 September 2024 ⏰ 2:00 pm CET Training Session 2: EHDS and Primary Data ➡️ Register now! 🗓️ 28 October 2024 ⏰ 2:00 pm CET Training Session 3: EHDS and Secondary Data ➡️ Register now! 🗓️ 25 November 2024 ⏰ 2:00 pm CET

EURORDIS Mental Health & Wellbeing Open Webinar: 🗓️ 23 October 2024 ⏰ 2:00 pm to 3:30 pm CET

https://www.eurordis.org/mental-health-open-webinar-how-to-deliver-a-diagnosis/ Join us for the EURORDIS 6th Mental Health & Wellbeing Webinar, “How to Deliver a Diagnosis,” on October 23, 2024, from 2:00 pm to 3:30 pm CET (Paris time). This webinar will explore the critical milestone of delivering a rare disease diagnosis for families and individuals affected by rare conditions. A timely and empathetic diagnosis can empower families, while poor communication can lead to significant emotional distress and mistrust in the healthcare system. Experts from European Reference Networks, including ERN CRANIO, ERN-EYE, and VASCERN, will share real cases and best practices, followed by a panel discussion. Don’t miss this opportunity to learn from leading specialists about best practices in delivering a rare disease diagnosis.

miércoles, 18 de septiembre de 2024

Neurostimulation shines a light on dopamine brain circuits | Drug Discovery News

Neurostimulation shines a light on dopamine brain circuits | Drug Discovery News: Stimulating dopamine neurons in adolescent mice rescued cognitive deficits associated with future development of neuropsychiatric disorders.

A genetic link to the development of epilepsy and autism | Drug Discovery News

A genetic link to the development of epilepsy and autism | Drug Discovery News: Epilepsy onset and seizure severity are linked to variants in the SCN2A gene, potentially leading to improved diagnostics and treatments.

Drug Trials Snapshots: YORVIPATH (palopegteriparatide) injection

YORVIPATH is a parathyroid hormone analog that is approved for the treatment of hypoparathyroidism in adults. Hypoparathyroidism is a disease in which there is insufficient parathyroid hormone (PTH) production, which leads to hypocalcemia (blood calcium levels that are low). https://www.fda.gov/drugs/drug-approvals-and-databases/drug-trials-snapshots-yorvipath

Multiple sclerosis 2024: Clinical trials for progressive multiple sclerosis: progress, new lessons learned, and remaining challenges Chataway et al. The Lancet Neurology

Executive Summary Multiple sclerosis is an immune-mediated disease of the central nervous system and a leading cause of neurological disability. Considerable progress in imaging techniques and fluid biomarkers have enhanced our understanding of MS, improving diagnostic, prognostic, and treatment monitoring tools. However, understanding the different clinical manifestations, timely diagnosis and treatment success remains a critical unmet need. https://www.thelancet.com/series/multiple-sclerosis-2024?dgcid=hubspot_update_feature_infocusbrainhealth_lanepemultiplesclerosis24&utm_campaign=update-lanepe&utm_medium=email&_hsenc=p2ANqtz--lf7Lfvy6QVrDoMswBrxjtxJvxRj8Hlfggxm8jOX9uYMQpwOrYDASmy05XGFaqr8m-DSmUqfX8hGMywHbHuIf5GQMpKQ&_hsmi=325079447&utm_content=325001241&utm_source=hs_email

Respiratory Syncytial Virus Published: September 9, 2024

Executive Summary Respiratory syncytial virus (RSV) is a common cause of lower respiratory tract infection (LRTI) and is responsible for a high burden of hospital admission and mortality in children. RSV–LRTI is also associated with long-term respiratory sequelae. Recent advances show great promise such as RSV vaccines and monoclonal antibodies. In the first of a Series of four papers, disease burden, clinical management, risk factors, and emerging therapies are discussed for severe RSV infection in children. The second paper reviews possible long-term sequelae, addressing inequities. The third paper focuses on RSV infections in adults, highlighting the neglect of this patient group. The fourth paper discusses RSV vaccination and immunoprophylaxis in young children, as well as exploring potential regulatory, policy, and implementation pathways. It also addresses the health economic evidence to inform product introduction decisions. Evidence reviewed in this Series should help implement preventive strategies to reduce the burden of RSV-related disease in vulnerable populations worldwide. https://www.thelancet.com/series/respiratory-syncytial-virus?dgcid=hubspot_email_conferencealerts_ers24_rsv24&utm_campaign=conferencealerts&utm_medium=email&_hsenc=p2ANqtz-8ohvq5juZEaL8jE5bLb1RoMmISdi9gGjmWMsWOp_gA8j3A5Sf2UEyod2s_X313tJo_pybhF0G-YLJx1oQNJNNlUcQFyQ&_hsmi=325072833&utm_content=323935440&utm_source=hs_email

Head and neck cancer consensus recommendations

Heterogeneity in diagnostic criteria for extranodal extensions results in inconsistencies in clinical decision making. Moreover, there is an urgent need for standardisation of endpoints in clinical trials for head and neck cancer. In this four-part Series by The Lancet Oncology, the Head and Neck Cancer International Group—a consortium of 21 national head and neck oncology research groups—provides consensus recommendations for clear definitions of extranodal extensions and clinical-trial endpoints to inform and standardise clinical practice globally. https://www.thelancet.com/series/head-and-neck-cancer-consensus-recommendations?dgcid=hubspot_email_infocusalerts-oncology_feature_lanoncheadneckcancer24&utm_campaign=infocusalerts-oncology&utm_medium=email&_hsenc=p2ANqtz--39y8Juo1h7k3zHCNmCAjen0kdGJsVP3PK8KcxJl2XmxKcVsbAnYUScL7VYQtoeRpzCEp1MijvzPTZY0SH1tfQEoDaCA&_hsmi=324659725&utm_content=322872993&utm_source=hs_email

lunes, 16 de septiembre de 2024

A dash of DNA improves protein identification in single cells | Drug Discovery News

A dash of DNA improves protein identification in single cells | Drug Discovery News: A new technique boosts the sensitivity of mass cytometry to allow detection and characterization of low-abundance markers, yielding new disease insights.

How the immune system destroys cancer drugs | Drug Discovery News

How the immune system destroys cancer drugs | Drug Discovery News: Natural killer cells can sometimes attack beneficial CAR T cell immunotherapies. Now, researchers have discovered why and a potential way to stop them.

TIKTOK’S TOXIC TRENDS: WHAT PARENTS NEED TO WATCH OUT FOR

Tiktok Toxic Trends: What Parents Need to Watch Out For By Ivanhoe Broadcast News on September 22, 2024 https://www.ivanhoe.com/?p=34124&preview=1&_ppp=05a0d2befb

THE DO’S AND DON’TS OF USING AI IN THE WORKPLACE

The Do’s and Don’ts Of Using AI in the Workforce By Ivanhoe Broadcast News on September 21, 2024 https://www.ivanhoe.com/?p=34121&preview=1&_ppp=4f94ed2b26

HELPING HIP DYSPLASIA: KEEPING YOUNG PLAYERS PLAYING

Hip Dysplasia Help: Keeping Young Players Playing By Ivanhoe Broadcast News on September 20, 2024 https://www.ivanhoe.com/?p=34143&preview=1&_ppp=95ba7f6019

BREAKTHROUGH FOR PICKY EATERS: HOPE FOR CHILDREN WITH EoE

Breakthrough For Picky Eaters: Hope for Children with EoE By Ivanhoe Broadcast News on September 19, 2024 https://www.ivanhoe.com/?p=34140&preview=1&_ppp=93592dd394

SURPRISING TREATMENT GIVING HOPE TO MELANOMA PATIENTS

Melanoma Patients: Surprising Treatment Giving Hope By Ivanhoe Broadcast News on September 18, 2024 https://www.ivanhoe.com/?p=34137&preview=1&_ppp=a8e55c8c24

SECONDS SAVE LIVES: NEW TRIAL FOR DIAGNOSING STROKE

New Trial for Diagnosing Stroke: Seconds Save Lives By Ivanhoe Broadcast News on September 17, 2024 https://www.ivanhoe.com/?p=34134&preview=1&_ppp=8ad4d8989d

‘Does smartphone exposure cause brain cancer?’: Ask a doctor There is 'no direct link' between cell phones and cancer formation, says neurosurgeon Dr. Paul Saphier Angelica Stabile By Angelica Stabile Fox News Published September 13, 2024 5:18pm EDT

‘Does smartphone exposure cause brain cancer?’: Ask a doctor There is 'no direct link' between cell phones and cancer formation, says neurosurgeon Dr. Paul Saphier Angelica Stabile By Angelica Stabile Fox News Published September 13, 2024 5:18pm EDT https://www.foxnews.com/health/smartphone-exposure-cause-brain-cancer-ask-doctor

51 inspirational quotes to help you stay strong, healthy and motivated in tough times The most important thing in life is to stop saying 'I wish' and start saying 'I will' — and other memorable quotes for life By Maureen Mackey Fox News Published September 15, 2024 10:50am EDT

51 inspirational quotes to help you stay strong, healthy and motivated in tough times The most important thing in life is to stop saying 'I wish' and start saying 'I will' — and other memorable quotes for life By Maureen Mackey Fox News Published September 15, 2024 10:50am EDT https://www.foxnews.com/health/51-inspirational-quotes-help-stay-strong-healthy-motivated

Alzheimer’s disease could be slowed by boosting a certain protein in the brain, researchers say A new study challenges longstanding assumptions about what causes the common dementia Melissa Rudy By Melissa Rudy Fox News Published September 16, 2024 4:30am EDT | Updated September 16, 2024 5:03am EDT

Alzheimer’s disease could be slowed by boosting a certain protein in the brain, researchers say A new study challenges longstanding assumptions about what causes the common dementia Melissa Rudy By Melissa Rudy Fox News Published September 16, 2024 4:30am EDT | Updated September 16, 2024 5:03am EDT https://www.foxnews.com/health/alzheimers-disease-slow-boosting-certain-protein-brain-researchers-say

Timely and Adaptive Strategies to Optimize Suicide Prevention Interventions Date/Time: September 19, 2024, 1:00–3:00 p.m. ET Location: Virtual

https://www.eventbrite.com/e/timely-and-adaptive-strategies-to-optimize-suicide-prevention-interventions-tickets-966442965927 Webinar: Timely and Adaptive Strategies to Optimize Suicide Prevention Interventions Date/Time: September 19, 2024, 1:00–3:00 p.m. ET Location: Virtual Therapeutic interventions are now being applied in ways that may enhance timely and tailored strategies to address suicide risk. This approach requires ready access to end-user data that informs proactive intervention strategies. This webinar from the National Institute of Mental Health will consider 1) which data sources are best equipped to inform intervention strategies, 2) which intervention aspects should involve tailoring strategies vs. simpler approaches that may be just as effective, and 3) how such approaches can be incorporated into providers’ workflows within a health care setting. This webinar brings together experts in areas that include passive and active data collection methods, the measurement of social contexts related to suicide risk, and the methodological aspects of Just-in-Time Adaptive Interventions (JITAI). The goal is to provide insights into developing and testing JITAIs for suicide prevention and to offer guidance on incorporating these adaptive interventions into healthcare systems.

Weight Control: Weight Control and Dietary Supplements

https://www.nccih.nih.gov/health/weight-control?nav=govd Achieving a healthy weight is important. However, many of the dietary supplements promoted as weight-loss aids haven’t been shown to be effective, and some can have harmful side effects. Supplements that have not been shown to be helpful for weight loss include green tea extracts, bitter orange, chitosan, and fish oil. Some studies suggest that berberine may be helpful for weight loss, but the evidence is not conclusive.

Tick-borne Wetland virus, newly discovered in China, could cause damage to brain, researchers say Virus causes range of symptoms, including neurologic issues or bleeding under the skin in severe cases Melissa Rudy By Melissa Rudy Fox News Published September 10, 2024 5:29pm EDT | Updated September 10, 2024 8:03pm EDT

Tick-borne Wetland virus, newly discovered in China, could cause damage to brain, researchers say Virus causes range of symptoms, including neurologic issues or bleeding under the skin in severe cases Melissa Rudy By Melissa Rudy Fox News Published September 10, 2024 5:29pm EDT | Updated September 10, 2024 8:03pm EDT https://www.foxnews.com/health/tick-borne-wetland-virus-newly-discovered-china-could-cause-damage-brain-researchers-say

Ohio healthcare company recruiting people with autoimmune conditions for innovative study

Ohio healthcare company recruiting people with autoimmune conditions for innovative study The company, AndHealth, aims to prove its unique approach can slow or even reverse the progression of some chronic diseases PAID CONTENT PAID CONTENT: This article was written in cooperation with AndHealth. Fox News editorial was not involved in the creation of this article. By Anna Medaris Paid Content by AndHealth.com Published September 11, 2024 9:54am EDT https://www.foxnews.com/health/ohio-healthcare-company-recruiting-people-autoimmune-conditions-innovative-study

Wearable lung patch uses deep learning to detect asthma and COPD

Wearable lung patch uses deep learning to detect asthma and COPD: Early detection of respiratory diseases is critical for treatment. Researchers at the Georgia Institute of Technology have developed a wearable lung patch which, in a pilot study, detected wheezing, a common indicator of asthma and COPD.

Drug Trials Snapshots: IMDELLTRA (tarlatamab/dlle)

Drug Trials Snapshots: IMDELLTRA (tarlatamab/dlle) IMDELLTRA is a drug approved for the treatment of adult patients with extensive stage small cell lung cancer (ES-SCLC), whose cancer has progressed after prior treatment with chemotherapy that contains platinum. https://www.fda.gov/drugs/development-approval-process-drugs/drug-trials-snapshots-imdelltra

lunes, 9 de septiembre de 2024

Parkinson’s disease risk is linked to gut health, researchers say Those who sustained damage to the gastrointestinal tract were 76% more likely to get the disease Melissa Rudy By Melissa Rudy Fox News 4 min read | Published September 8, 2024 4:21pm EDT

Parkinson’s disease risk is linked to gut health, researchers say Those who sustained damage to the gastrointestinal tract were 76% more likely to get the disease Melissa Rudy By Melissa Rudy Fox News 4 min read|Published September 8, 2024 4:21pm EDT https://www.foxnews.com/health/parkinsons-disease-risk-linked-gut-health-researchers-say

sábado, 7 de septiembre de 2024

The future of chemotherapy clicks into place | Drug Discovery News

The future of chemotherapy clicks into place | Drug Discovery News: Selective labeling of cancer stem cells with click chemistry-capable functional groups offers a new strategy for anticancer drug delivery.

Profiling the spatial secrets of the placenta | Drug Discovery News

Profiling the spatial secrets of the placenta | Drug Discovery News: While vital for a healthy pregnancy, the placenta is not well understood. Researchers now take advantage of spatial biology approaches to plumb its secrets.

Developing new drugs to treat addiction | Drug Discovery News

Developing new drugs to treat addiction | Drug Discovery News: No pharmaceutical treatments exist for addictions to drugs like cocaine or cannabis. Now, scientists are engineering gene therapies, immunotherapies, and more.

Predicting protection for maternal GBS vaccines | Drug Discovery News

Predicting protection for maternal GBS vaccines | Drug Discovery News: A new model predicts how well maternal vaccines protect babies from Group B Streptococcus, propelling much needed shots through late-stage clinical trials.

Managing the metabolic side effects of antipsychotic drugs | Drug Discovery News

Managing the metabolic side effects of antipsychotic drugs | Drug Discovery News: Dopamine stimulators may lessen the systemic side effects — often weight gain and diabetes — of dopamine-blocking antipsychotics.

SHIFT SHOCK: AVOID DISAPPOINTMENT AT YOUR NEW JOB!

Shift Shock: Avoid Disappointment At Your New Job! By Ivanhoe Broadcast News on September 14, 2024 https://www.ivanhoe.com/?p=34089&preview=1&_ppp=da7d3658a3

SIZZLING STRESS: THE HAZARDS OF EXTREME HEAT

Sizzling Stress: The Hazards of Extreme Heat By Ivanhoe Broadcast News on September 14, 2024 https://www.ivanhoe.com/?p=34086&preview=1&_ppp=407dfadba0

SW PINK ERASER PROJECT: ERASING BREAST CANCER

SW Pink Eraser Project: Erasing Breast Cancer By Ivanhoe Broadcast News on September 11, 2024 https://www.ivanhoe.com/?p=34077&preview=1&_ppp=cd9c383b70

MONEY MATTERS: GIVING KIDS A FINANCIAL HEAD START

Manage Money: Giving Kids A Financial Head Start By Ivanhoe Broadcast News on September 13, 2024 https://www.ivanhoe.com/?p=34083&preview=1&_ppp=4060de0330

SURVIVING THE FIRST SEMESTER AS THE PARENT OF A COLLEGE STUDENT

Surviving The First Semester As The Parent Of College Students By Ivanhoe Broadcast News on September 12, 2024 https://www.ivanhoe.com/?p=34080&preview=1&_ppp=a161efaa1f