Coenzyme Q10

https://www.nccih.nih.gov/health/coenzyme-q10?nav=govd Coenzyme Q10 (CoQ10) is a substance that is naturally present in the human body, with the highest levels in the heart, liver, kidneys, and pancreas. It is sold in the United States as a dietary supplement. Because CoQ10 has important functions in the body and because people with some diseases have reduced levels of this substance, researchers have been interested in finding out whether CoQ10 supplements might have health benefits.

Drug Trials Snapshots: QULIPTA (atogepant)

Drug Trials Snapshots: QULIPTA (atogepant)(atogepant) https://www.fda.gov/drugs/drug-approvals-and-databases/drug-trials-snapshots-qulipta QULIPTA is a drug used daily for the preventive treatment of episodic migraine (with headaches occurring up to 14 days per month) in adults. A migraine is a type of headache that can be associated with nausea, vomiting, and/or sensitivity to light or sound.

Drug Trials Snapshots: LEQVIO (inclisiran)

Drug Trials Snapshots: LEQVIO (inclisiran) https://www.fda.gov/drugs/drug-approvals-and-databases/drug-trials-snapshots-leqvio LEQVIO is a drug for the treatment of high low-density lipoprotein (LDL) cholesterol, which is sometimes referred to as “bad cholesterol”.

domingo, 23 de julio de 2023

BEYOND THE BIRDS & THE BEES: HAVING THE SEX TALK WITH YOUR KIDS

Beyond the Birds the Bees: Having the Sex Talk with Your Kids By Ivanhoe Broadcast News on July 29, 2023 https://www.ivanhoe.com/?p=30817&preview=1&_ppp=dbd053bfd8

BIOABSORBABLE IMPLANTS HEAL TINY BONES!

Bioabsorbable Implants Heal Tiny Bones Quicker! By Ivanhoe Broadcast News on July 27, 2023 https://www.ivanhoe.com/?p=30831&preview=1&_ppp=0f7212f2ad

viernes, 21 de julio de 2023

Why Harvard is opening a happiness center

https://www.statnews.com/2016/04/26/harvard-opening-happiness-center/?utm_campaign=morning_rounds&utm_medium=email&_hsmi=267224356&_hsenc=p2ANqtz-8yRlr4KxCPt45vGo1RtFSub4kKq1gx9ZlAJLXil4r5w1I7UYu1LV6nxR8xhRiLoTucvCH4ExlrmRAjuQCGpo_gCNbtQg&utm_content=267224356&utm_source=hs_email Not to be a killjoy, but those happiness studies you hear about may be flawed Mainstream media’s doing it wrong. That’s what a new systematic review in Nature Human Behaviour says about how the media portrays research pitching mindfulness and exercise as paths to greater happiness. The authors point out squishiness in scientific evidence behind findings that may prompt news coverage. (For the record, a “happiness” search of the STAT archives turned up only one story saying happy people might not live longer and another reporting Harvard opened a happiness center.) Here’s what the researchers found after scrutinizing 532 studies looking at happiness after expressing gratitude, enhancing sociability, exercising, practicing mindfulness or meditation, and increasing exposure to nature. Almost 95% of experiments that upped exposure to nature, exercise, or engaging in mindfulness or meditation lacked sufficient statistical power to detect notable benefits. Only 57 studies were pre-registered or had well-powered experiments that tested these strategies on subjective well-being in healthy individuals. Happy now?

Spinal muscular atrophy (SMA) is a rare genetic and progressive neuromuscular condition

https://www.sma-europe.eu/awareness2023 August will mark Spinal Muscular Atrophy (SMA) Awareness Month, and a number of organisations will dedicate the month to raising awareness about this rare genetic and progressive neuromuscular disorder. To shed light on the diverse experiences of people with this condition, our member organisation, SMA Europe, has launched its 2023 Awareness Campaign and is sharing eleven stories from individuals living with SMA.

Caring for Rare 2023

vhttps://caringforrare.com/ The National Organization for Rare Diseases of Serbia (NORBS) has announced that its fourth conference on rare diseases, entitled Caring for Rare, will take place from 14-16 September 2023 in Belgrade, Serbia, and the working language will be English. The event is comprised of two days of conferences, along with one day of workshops, and is free to attend.

Mental Health & Wellbeing

https://www.eurordis.org/mental-wellbeing/ EURORDIS has recently established the EURORDIS Mental Health Partnership Network to support the delivery of community activities in the framework of our Mental Wellbeing Initiative. If you are interested in contributing your insights to the Partnership Network, apply now! We are also delighted to report that we recently became a member of Mental Health Europe. https://form.jotform.com/231915201553347

What can drug repurposing mean to patients with rare diseases?

What can drug repurposing mean to patients with rare diseases? https://www.eurordis.org/what-can-drug-repurposing-mean-to-patients-with-rare-diseases/ Beacon for rare diseases: ensuring that no one faces their rare journey alone https://www.rarebeacon.org/ THE EUROPEAN PLATFORM FOR MEDICINES REPURPOSING Building a sustainable European innovation platform to enhance the repurposing of medicines for all https://remedi4all.org/

domingo, 16 de julio de 2023

"It is surprising that we still know relatively little regarding whether patients with immune-mediated inflammatory diseases are more or less susceptible to long COVID compared to patients without immune-mediated inflammatory diseases."

"It is surprising that we still know relatively little regarding whether patients with immune-mediated inflammatory diseases are more or less susceptible to long COVID compared to patients without immune-mediated inflammatory diseases." https://www.thelancet.com/journals/lanrhe/home Treating subclinical arthritis: prevention or overtreatment? The Lancet Rheumatology https://www.thelancet.com/journals/lanrhe/issue/current

“Palliative care needs represent opportunities, not currently being fully realised, to prevent and reduce unnecessary suffering for people with neurological diseases.”

https://www.thelancet.com/journals/laneur/home The structured ambulatory post-stroke care program for outpatient aftercare in patients with ischaemic stroke in Germany (SANO): an open-label, cluster-randomised controlled trial Schwarzbach et al. Published: July 14, 2023 https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(23)00216-8/fulltext Prioritising integration of palliative care to prevent suffering The Lancet Neurology https://www.thelancet.com/journals/laneur/issue/current

"Overall, these new antifungal drugs raise hope that replenishing the arsenal of therapeutic options for invasive fungal infections might be possible."

https://www.thelancet.com/journals/laninf/home Protective immunity of SARS-CoV-2 infection and vaccines against medically attended symptomatic omicron BA.4, BA.5, and XBB reinfections in Singapore: a national cohort study https://www.thelancet.com/journals/laninf/article/PIIS1473-3099(23)00060-9/fulltext An exciting time for antifungal therapy The Lancet Infectious Diseases https://www.thelancet.com/journals/laninf/issue/current

Homecare medicines services are failing patients in the UK

https://www.thelancet.com/journals/langas/issue/current The top 10 research priorities for inflammatory bowel disease in children and young adults: results of a James Lind Alliance Priority Setting Partnership https://www.thelancet.com/journals/langas/article/PIIS2468-1253(23)00140-1/fulltext

Could Drops Replace Eye Injections for Retina Disease?

https://www.cuimc.columbia.edu/news/could-drops-replace-eye-injections-retina-disease