Aporte a la rutina de la trinchera asistencial donde los conocimientos se funden con las demandas de los pacientes, sus necesidades y las esperanzas de permanecer en la gracia de la SALUD.
miércoles, 31 de marzo de 2021
martes, 30 de marzo de 2021
lunes, 29 de marzo de 2021
domingo, 28 de marzo de 2021
sábado, 27 de marzo de 2021
viernes, 26 de marzo de 2021
jueves, 25 de marzo de 2021
miércoles, 24 de marzo de 2021
martes, 23 de marzo de 2021
lunes, 22 de marzo de 2021
domingo, 21 de marzo de 2021
sábado, 20 de marzo de 2021
viernes, 19 de marzo de 2021
jueves, 18 de marzo de 2021
miércoles, 17 de marzo de 2021
The Ehlers-Danlos Society EDS and HSD Global Registry & Repository | The Ehlers Danlos Society : The Ehlers Danlos Society
The Ehlers-Danlos Society EDS and HSD Global Registry & Repository | The Ehlers Danlos Society : The Ehlers Danlos Society
MEMBERS' CORNER
A new EDS and HSD Global Registry and Repository platform has been developed to advance understanding of the EDS, HSD, and related symptoms and conditions. Check it out now!
Health Care Award 2021.pdf
Health Care Award 2021.pdf
PATIENTS ADVANCING RESEARCH
Call for applications for the Kindness for Kids-Health Care Award 2021. Apply by 30 April 2021 to receive up to 40,000 euro for interdisciplinary, innovative research projects which will help to improve the quality of life of those affected.
DRSM_job_ad_2021.pdf
DRSM_job_ad_2021.pdf
WHAT'S NEW AT EURORDIS?
EURORDIS is hiring a Development Relations Senior Manager - apply by 21 March 2021.
EURORDIS TV | www.eurordis.org
EURORDIS TV | www.eurordis.org
RARE 2030: FORESIGHT IN RARE DISEASE POLICY
Learn more about the eight recommendations for a better future for people with rare diseases in Europe, from faster diagnosis to person-centred care, in this video.
Recommendations
Recommendations
GET INVOLVED
Share the Rare 2030 recommendations to guide future policy actions to improve the lives of people with rare diseases in Europe.
EURORDIS TV | www.eurordis.org
EURORDIS TV | www.eurordis.org
EURORDIS BLACK PEARL AWARDS
Watch the video of this year’s EURORDIS Lifetime Achievement Awardee, Milan Macek, who has reinforced the importance of an interdisciplinary approach to diagnosis and research of rare diseases.
Rare Disease Day ® 2021 - Tell your story!
Rare Disease Day ® 2021 - Tell your story!
RARE DISEASE DAY 2021
In spite of the COVID-19 pandemic, Rare Disease Day 2021 proved to be a success with over 300 people with rare diseases sharing their stories. Read them now!
Hemolytic disease of the fetus and newborn: Updates
Hemolytic disease of the fetus and newborn: Updates
RARECONNECT
Join the Hemolytic disease of the fetus and newborn communities to connect with others around the world!